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Posts tagged with ehlers-danlos-syndrome:

Professional Jeopardy

Pain is a companion. It accompanies me when I rise, only allows brief privacy to shower, and returns with every step, turn, and bend. I tell…

If I Left You Behind

I have spent most of 2017 writing long-form non-fiction pieces concerning flaws in the American healthcare system, often attempting to…

Commuting While Disabled

During the last several months, I’ve written much concerning how people with disabilities are only valuable to the media for their…

Shades of Rare Illness

I submitted the following essay to The Cannabist last Friday in response to Season 3, Episode 9 of The Cannabist Show . Ultimately, editor…

Casual Ableism

In order to help you best understand the past few weeks, we begin this post listening in on a recent conversation with my neurologist. “Can…

Becoming Disabled

This past week has been one of the most difficult on record. It began with preparing an application for a position I hoped to fill, while…

Life on the Inside, Part II

Lifting a 14-pound child, radical weather changes, rising levels of acute pain, and emerging chronic fatigue symptoms are changing my…

Life on the Inside, Part I

I wake up, though not by choice. The alarm clock isn’t ringing, and the apartment is quiet. My bedsheets wrap me in a warm, kind hug; and…

Painless Keyboarding

What is your first thoughts in reaction to the term “mechanical keyboard”? Nostalgia? The obnoxious “clicky” sound you hoped to leave behind…